Friday, October 16, 2009

Oct. 15 (day 15 and still counting

I was just given the weekend off from the clinic. I asked if they would
let me go home but it was a definite No! My nuetrophils are still way to
low to be around anyone. The nurse told me to stay in my nice little apt.
and close to the clinic.
I have had an interesting week. Sun. (day 11) I saw a weekend doctor and
he told me I looked so good. Teasingly, he told me not to tell anyone I
was given melphalan because I looked too good. Then, Mon (day 12) I saw my
regular doctor and the new attending research doctor who told me he heard
how while I was doing and I comment how young he looked. It got very quiet
and the doctors and nurse were just staring at me. I asked why they were
staring at me and my doctor said there was nothing else he could do for
me. The labs haven't come back yet so we couldn't look at them. After the
doctors left, the nurse said that I am doing so well they didn't have
anything to discuss with me. Normally, people are so sick they have some
plan of action. On Tues (day 12), I was sent to the triage nurse to get my
vitals and sent home. They were too busy seeing sick people. I am just too
healthy for them. Then today as I said earlier, I free for the weekend.
They were teasing me about if I came crawling in on Monday, they will know
I didn't follow protocol and was goofing off this weekend.
There is a chance I can head home in about 2 weeks if my nuetrophils reach
.5. I am at .11 now.
God has given me an amazing body. I recoup from illnesses usually pretty
quickly plus with all the prayers I know are going up for me I am looking
forward to going into complete remission. Praise God
Love, Becky

Saturday, October 10, 2009

Oct 10 - Day 10 after transplant

I did not realize I haven't posted anything for awhile. I have been sleeping a lot and I did not have very much of energy. Battling with diarrhea and some vomiting. I been able to keep my vomiting under control with anti-nausea pills. I have IV fluids at home and needed a red blood transfusion on day 7. I am medically called nuetraphenic right now. It means I have no immune system, practically no white blood cells to fight any infection. I am at .12 units (normal range is 4.5-10) I dropped to .03 on day 7 and .04 and day 8. My doctor comes in on day 9 and said congratulations your white blood cells or up 3x. I laughed at him considering I was so low. I still have a long ways to go. The only concern now is my platelet count is down to 16 (normal range is 150+) If I go in today and it has dropped to 10 I will need a platelet transfusion. Platelet cells are those cells that help clot your blood. So very important I don't get any cuts right now.
The best thing that has happen so far is that I haven't had any fevers so I have been able to stay out of the hospital. My doctor says because I haven't become inpatient I am what they called a statistical anomaly.
I feel well today. I will see the doctor again in about an hour and a half. If my counts continue to rise everything will be up hill from this point on. Looking forward to keeping past the need to sleep so much. I believe it affected me last night because I woke up wide awake at 1:45. I checked my email and went on facebook (only because my nephew added me as a friend and I had to confirm).
I believe many prayers are being answered. I have not gotten a fever and I am looking forward to a speedy recovery if my counts are on the rise. Our God is so awesome. God bless you all.
Love, Becky